Well ... no surgery -- YET. Yet being the important phrase.
Adult Chiari Malformation, and five scattered lesions. Uncertain if the lesions are helping cause the pain, or are damage FROM the pain.
Adult Arnold Chiari I Malformation Fabulous link, pretty much explains -all- of the problems I've been having. I'm textbook on it.
The bizarre thing is, the Chiari was NOT on my last MRI. So it's growing.
Right now, the risks of surgery are greater than the risks of leaving it alone.
I get another MRI in 6 months or so, to check on the size, and see if surgical correction is required. In the meantime, a whole slew of new meds, including blood pressure (and the Chiari explains why my BP has gotten weird) medication to try to keep the worst of it down, and new anti-inflammatories specifically to help with this sort of thing.
Bleh.
Subscribe to:
Post Comments (Atom)
1 comment:
Hi -
Wow! I just found your blog last night and I am SOOO interested! I also have Arnold Chiari Malformation. I guess I've had it since birth, as I was born with spina bifida, but I didn't know until a dr.'s appointment this summer that I have it. Thankfully, I feel no effects from it - yet, anyway.
I wish you a ton of luck with getting your migraines and other symptoms under control. I would LOVE IT if you were able to continue posting on your blog. I have a blog where I discuss being a disabled mom to my healthy toddler. I'm excited to add your site to my blogroll - but I wonder if you'll post some more?
I didn't see an email address to reach you at, so hopefully you'll find this comment and get in touch with me through my site.
Take care. Wishing you a quick resolution to your health troubles.
Amy :)
Post a Comment